RESOURCES

STATE PROTECTION AND ADVOCACY

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California
Sheila Conlon-Mentkowski, Chief, Client Assistance Programs
(916) 558-5395
(916) 558-5391
Department of Rehabilitation
712 Capitol Mall 4th Floor
Sacramento, CA 95814
smentkow@dor.ca.gov
http://www.dor.ca.gov

Nevada
Margaret Moroun
CAP Director, Client Assistance Program
(702) 486-6688
(702) 486-6691
2800 E. Saint Louis Ave
Las Vegas, NV.  89104
mjmoroun@nvdetr.org
http://members.delphi.com/nvcap/index.htmlB

VOCATIONAL REHABILITATION PROGRAMS

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California
California Department of Rehabilitation
2000 Evergreen Street
Sacramento, CA 95815-3832
(916)263-8981
(916) 263-7474 (fax)
publicaffair@dor.ca.gov
http://www.dor.ca.gov

Nevada
State of Nevada Department of Employment, Training, and Rehabilitation
500 East Third Street
Carson City, NV 89713
(775) 684-3849
detradmn@nvdetr.org
http://www.nvdetr.org

MILITARY RESOURCES (Exceptional Family Member Program offices)

ARMY

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California

 

Fort Irwin, CA
ACS-EFMP
Building 548
PO Box 105090
Fort Irwin, CA 92310-5123
Office: 1-760-380-3698

Presidio of Monterey
ACS-EFMP
Defense Language Institute and Foreign Language Center
Presidio of Monterey, CA. 93944
Office: 1-831-242-7653

Sierra Army Depot, C A
ACS-EFMP
Sierra Army Depot
 Building 150
Herlong, CA 96113
Office: 1-530-827-4190

 

MARINE CORPS

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California

 

12th Marine Corps District
HQ, 12th Marine Corps District
Attn: QOL
3704 Hochmuth Avenue, Building 8
San Diego, CA 92140-5191
Office: 1-619-542-5568

Marine Corps Base-Camp Pendelton
Commanding General
Marine and Family Services, Attn: EFMP
MCB Box 555020
Camp Pendelton, CA 92055-5020
Office: 1-760-725-5363

Marine Corps Recruit Depot-San Diego
Commanding General
Attn: Marine Corps Community Services
Marine Corps Recruit Depot/WRR
4025 Tripoli Avenue, Building 14
San Diego, C A. 92140-5023
Toll Free: 1-888-718-3027
Office: 1-619-524-6078

MCAS Miramar
Commanding General
Attn: Marine Corps Community Services
MCAS Miramar
PO box 452008, Building 2274
San Diego, CA 92145-2008
Office: 1-858-577-8644

MC Logistical Base-Barstow
Commanding Officer
Attn: Marine Corps Community Services
MCLB Box 110100, Building 30
Barstow, CA 92311-5001
Office 1-760-577-6755

MCAGCC-Twentynine Palms
Commanding General
Attn: Marine Corps Community Services
Box 788150, Building 1551
Twentynine Palms, CA  92278-8150
Office: 1-760-830-7740

NAVY

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California

 

BRMEDCLINC-Barstow, CA
Commanding Officer
Attn: Medical
Box 110193
Barstow, CA 92311-5050
Office: 1-760-577-6491 ext 117/103

NAVHOSP Camp Pendelton, CA
Commanding Officer
Naval Hospital code 01F
Box 555191
Camp Pendelton, CA 92055-5191
Office: 1-760-725-1295/1211

BRMEDCLINIC, China Lake, CA
Office in Charge
Naval Branch Medical Clinic
1 Administration Circle
China Lake, CA 93555-6100
Office: 1-760-939-8060/8000

BRMEDCLINIC, El Centro, CA
Director
HD BRMEDCLINIC
Building 523
NAF El Centro
El Centro, CA 92243
Office: 1-760-339-2630

NAVHOSP Lemoore, CA
Naval Hospital
Patient Administration
937 Franklin Avenue
Lemoore, CA 93245-5012
Office: 1-559-998-4978
Office: 1-559-998-4440

NAVMEDADMIN, Monterey, CA
Officer in Charge
Naval Medical Administrative Unit
473 Cabrillo Street Suite A1A
Monterey, CA 93994-3208
Office: 1-831-242-5614

FSC NAS
Family Service Center
Naval Air Station
Code FS200
521 West 9th Street
Point Mugu, CA 93042-5001
Office: 1-805-982-6152/6300

MEDCLINIC Port Hueneme, CA
Commanding Officer
NAVMEDCLINIC
162 First Street
Port Hueneme, CA  93043-4316
Office: 1-805-982-6152/6300

Balboa Naval Hospital
Naval Medical Center San Diego
Commanding Officer
ATTN: EFM Program
34520 Bob Wilson Drive, Suite 100
San Diego, CA 92134-5000
Office: 1-619-532-6941

FSCCA Advocate
NAVSTA Code 12
3005 Corbina Alley Suite 1
San Diego, CA 92136
Office: 1-619-556-7404

BMC MCRD San Diego
Officer in Charge
Branch Medical Clinic
35000 Guadalcanal Street
MCRD San Diego, CA 92140
Office:  1-619-524-4045

BRMEDCLINIC San Diego
Officer in Charge
 Naval Branch Medical Clinic
NAS Miramar
19871 Mitscher Way,
San Diego, CA  92145-5197
Office: 1-858-577-9922/1975/4656

BMC San Diego NAVSTA
Officer in Charge
Navy BrMedClinic NAVSTA
2450 Craven Street
BOX 368153
San Diego, CA  92136-5599
Office: 1-619-856-9474/8069

BMC San Diego Point Loma
NMCSD BR Med Clinic NTC
2650 Stockton Road Building 624
San Diego, CA  92106-6000
Office: 1-619-524-0933

NDC Southwest San Diego
Commanding Officer NDC Southwest
2310 Craven Street
San Diego, CA 92136
Office: 1-619-556-8234

USNS Mercy (TAH19)
Officer in Charge
Medical Treatment Facility
USNS Mercy (T-AH-19)
FPO AP 96672-4090
Office: 1-619-556-3311

Nevada

 

BMC Fallon Nevada
Officer in Charge Naval Branch Medical Clinic
4755 Pasture Road
NAS Fallon, NV 89496
Office:  1-775-426-3184

 

US COAST GUARD

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California

 

Ms. Kristine Cooper
ISC Alameda
Commander (w)
Integrated Support Command Alameda
US Coast Guard IS, Building 16
Alameda, CA 94501-5100
Office:  1-510-437-3881

Mr. Tony Haynes
 ISC San Pedro
Commander (w)
Integrated Support Command, San Pedro
1001 S. Seaside Avenue, Building 38
San Pedro, CA 90731-0208
Office: 1-310-732-7584

NATIONAL RESOURCES FOR SPECIFIC DISABILITIES

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Angelman Syndrome Foundation
4255 Westbrook Drive, Suite 216
Aurora, IL 60504
http:www.angelman.org

 

Autism

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Autism National Committee
 7 Teresa Circle
Arlington, Ma
http://www.atcom.org

Autism Research Institute
Matt Kabler, Assistant to Director
4182 Adams Avenue
San Diego, CA 92116
http://www.autismresearchinstitute.com

Autism Resources Chapel Hill TEACH Center
100 Renee Lynn Court
Carrboro, NC 27510
http://www.unc.edu/~cory/autism-info

Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814
http://www.autism-society.org//

Autism Treatment Center
2080 S. Undermountain Road
Sheffield, MA 01275
http://www.autismtreatmentcenter.org

Autism Speaks
2 Park Avenue 11th Floor
New York, NY 10016
www.autismspeaks.org

First Signs
PO Box 358
Merrimac, MA 01860
http://www.firstsigns.org

Autism Today Education Corporation
2016 Sherwood Drive, Suite 3
Sherwood Park, AB
www.autismtoday.com

Kennedy Krieger Institute Center for Autism and Related Disorders
Care Management
707 North Broadway
Baltimore, MD 21205
http://www.kennedykrieger.org

MAAP Services for Autism and Asperger Syndrome
MaryAnne Neiner
 PO Box 524
Crown Point, IN 46302
http://www.maapservices.org

National Autism Hotline/Autism Services Center
Ruth Sullivan, Ph.D., Executive Director
929 Fourth Avenue
PO Box 507
Huntington, WV  25710-0507
http://www.autismservicescenter.org

Organization for Autism Research
2000 North 14th Street, Suite 480
Arlington, VA 22201
http://www.researchautism.org

Cerebral Palsy

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Kennedy Krieger Institute
Phelps Center for Cerebral Palsy and Neurodevelopmental Medicine
Contact: Care Management
707 North Broadway
Baltimore, MD  21205
http://www.kennedykrieger.org

Matheney Medical and Educational Center
P.O. Box 339, 65 Highland Avenue
Peapack, NJ 07977
Phone: 908-234-0011 x273

United Cerebral Palsy Association
1660 L. Street North West, Suite 700
Washington, DC 20036-5602
http://www.ucp.org

 

Deaf-Blind

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American Association for the Deaf- Blind
8630 Fenton Street, Suite121
Silver Spring, MD 20910-3803
http://www.aadb.org

National Family Association for Deaf-Blind
111 Middle Neck Road
Sands Point, NY  11050
http://www.NFADB.org

National Consortium on Deaf-Blindness
345 North Monmouth Avenue
Monmouth OR 97361
http://www.nationaldb.org/

 

Down Syndrome

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Association for Children with Down Syndrome
4 Fern Place
Plainview, NY11803
http://www.acds.org

Foundation for Children with Down Syndrome
1502 S. Michigan Avenue, 12-3
Joplin, MO 64804
Phone: 417-626-8603

National Down Syndrome Society
666 Broadway, 8th Floor
New York, NY10012-2317
http://www.ndss.org

 

Epilepsy

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American Epilepsy Society
342 North Main Street
West Hartford, CT  06117-2507
http://www.aesnet.org

Epilepsy Foundation National Office
8301 Professional Place East
Landover, MD 20785
http://www.epilepsyfoundation.org

Fetal Alcohol Syndrome

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National Organization on Fetal Alcohol Syndrome
President: Dim Donaldson
900 17th Street West, suie 910
Washington, DC 20006
http://www.nofas.org

The Fetal Alcohol Syndrome Family Resource Institute
PO Box 2525
Lynwood, WA 98036
http://www.fetalalcoholsyndrome.org

Hearing Impairments

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American Society for Deaf Children
3820 Hartzdale Drive
Camp Hill, PA 17011
http://www.deafchildren.org

American Speech, Language, Hearing Association
2200 Research Boulevard
Rockville, MD 20850
http://www.asha.org

Deafness Research Foundation2801 M Street, MS
Washington DC  20007
http://www.drf.org

Gallaudet University
800 Florida Avenue, North East
Washington DC 20002-3695
http://www.gupres,gallaudet.org

National Association of the Deaf
8630 Fenton Street, Suite 820
Silver Spring, MD  30910
http://www.nad.com

 

Intellectual Disabilities

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American Association of Intellectual and Developmental Disabilities
Tamie Hopp, Executive Director
444 North Capitol Street, Suite 846
Washington DC 0001-1512
http://www.aamr.org

National Association of the dually Diagnosed (NADD)
132 Fair Street
Kingston, NY12401
http://www.thenadd.org

Developmental Disabilities Nurses Association
1733 H Street
Suite 330PMB 1214
Blaine, WA 98230
http://www.ddna.org

The ARC of the United States
1010 Wayne Avenue, Suite 650
Silver Spring, MD 20910
http://www.TheARC.org/

Neurological Disorders

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National Institute of Neurological Disorders and Stroke
Building 31, Room 8A-07 31
Center Drive, MSC 2540
PO Box 5801
Bethesda, MD 20824
http://www.ninds.nih.gov

 

Praeder-Willi Syndrome

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The Praeder Willi Syndrome Association, USA
5700 Midnight Pass Road
Sarasota, FL 34242
http://www.pwsausa.org

 

Rare Disorders

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National Organization for Rare Disorders (NORD)
PO Box 1968
Danbury, CT 
http://www.rarediseases.org

 

Rett Syndrome

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International Rett Syndrome Association
9121 Piscataway Road #28
Clinton, MD  20735
http://www.rettsyndrome.org

 

Speech Disorders

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Center for Speech and Language Disorders
606 North Michigan Street
Elmhurst, IL 60126
http://www.csld.org

 

Tuberous Sclerosis

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Tuberous Sclerosis  Alliance
801 Roeder Road, Suite 750
Silver Spring, MD 20910
http://www.tsalliance.org

 

Visual Impairments

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American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
http://www.afb.org

Braille Institute of America
741 North Vermont Avenue
Los Angeles, CA 92029
http://www.brailleinstitute.org

National Association for Parents of Children with Visual Impariments
PO Box 317
Watertown, MA 02471
http://www.napvi.org

 

Williams Syndrome

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Williams Syndrome Association
Ms. Terry Monkaba
570 Kirts Boulevard
Clawson, MI 48017
http://www.williamssyndrome.org

 

STATE ASSISTIVE TECHNOLOGY PROGRAMS

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California

California Assistive Technology Systems (CATS)
California Department of Rehabilitation
2000 Evergreen
Sacramento, CA  95815
Office: 916-274-6325
http://www.atnet.org

Nevada

Nevada Assistive Technology Collaborative
Department of Human Resources
Office of Disability Services
 3656 Research Way, Suite 32
Carson City, NV  89706
Office: 775-687-4452
http://hr.state.nv.us/directors/disabilitysvcs/dhr_ods.htm

TITLE 5

Every state has a Title V program that provides health related services and assistance accessing other services as well as parent support and information networks.

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California

Children’s Medical Services Branch
1515 K Street St., Room 400 MS 8100
PO Box 997413
Sacramento, CA  95899-7413
Office: 916-327-1400
http://www.dhs.ca.gov/pcfh/cms/ccs/

Nevada

Gloria Dehyle
Bureau of Family Health Services
3427 Goni Road, Suite 108
Carson City, NV 89706
Office: 775-684-4285
http://health2k.state.nv.ud/cshcn/

PARENT TRAINING AND INFORMATION CENTERS

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California

 

Exceptional Parents Unlimited
4440 North First Street
Fresno, CA 93726
Office: 559-229-2000
http://exceptionalparents.org
Serves: Central California

Chinese Parents Association for the Disabled
PO Box 2884
San Gabriel, CA 91778
Office:  626-307-3837
http://cpad.org
Serves Los Angeles and Orange Counties

Fiesta Educativa
163 S. Avenue 24, Suite 201
Los Angeles CA 90031
Office: 323-221-6696
http://fiestaeducativa.org
Serves: East Los Angeles

Loving Your Disabled Child
3407 7th Avenue
Los Angeles, CA 90018
Office: 323-373-0323
http://lydc.org
Serves LA county

Matrix Parent Network and Resource Center
 94 Galli Drive, Suite C
Novato, CA 94949
Office: 415-884-3535
http://matrixparents.org
Serves Northern California

Parents of Watts
10828 Lou DillonAve
Los Angeles, CA 90059
Office: 323-566-7556
Serves Los Angeles

Support for Families of Children with Disabilities
2601 Mission Street #606
San Francisco, Ca 94110
415-282-7494
http://supportforfamilies.org
Serves San Francisco

Team of Advocates for Special Kids (TASK)
100 West Cerritos Ave.
Anaheim, CA 92805
714-533-8275
http://taskca.org
Serves Southern California

Vietnamese Parents of Disabled Children
7526 Syracuse Avenue
Stanton, CA 90680
866-609-3218
http://VPDCA.org
Serves Los Angeles

 

 

Nevada

Nevada Parents Encouraging Parents (PEP)
2355 Red Rock Street, #106
Las Vegas, NV 89146
702-388-8899
http://mvpep.org

 

FEDERAL AND FEDERALLY FUNDED INFORMATION RESOURCES

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National Information Center for Children and Youth with Disabilities (NICHCY)
PO Box 1492
Washington, DC 20013-1492
800-695-0285
http://www.nichcy.org

National Rehabilitation Information Center (NARIC)
1010 Wayne Ave., Suite 800
Silver Springs, MD  20910
800-346-2742
http://www.naric.com

National Health Information Center (NHIC)
PO Box 1133
Washington DC  20013-1133
800-336-4797

National Center on Accessibility
Indiana University
2805 East 10th St. , Suite 190
Bloomington, IN  47404-3732
812-856-4422
http://www.ncaonline.org

National Arts and Disability Center
Tarjan Center for Developmental Disabilities
300 UCLA Medical Plaza, Suite 3310
Los Angeles, CA 90095-6967
310-794-1141
http://www.tarjancenter.ucla.edu

Assistive Technology and Rehabilitation Equipment
ABLEDATA
8630 Fenton St., Suite 930
Silver Springs, MD  20910
301-608-8998
http://www.abledata.com

DB-Link (National Information Clearing House on Children who are Deaf-Blind)
345 N. Monmouth Ave.
Monmouth, OR 97361
800-438-9376
http://www.dblink.org

National Association for the Education of Young Children (NAEYC)
1313 Silver Street NW, Suite 500
Washington DC 20005
800-424-2460
http://www.naeyc.org

Federal Resource Center for Special Education
Academy for Educational Development
1825 Connecticut Avenue NW
Washington DC  20009
202-884-8210
http://www.rrfcnetwork.org

Office of Special Education and Rehabilitation Services
US Department of Education
400 Maryland Ave, SW
Washington, DC 20202
202-245-7407
http://www.ed.gld

Office of Disability Employment Policy-US Dept. of Labor
200 Constitution Ave.
US Department of Labor
Washington, DC 20004
866-633-7365
http://www.dol/odep.gov

National Institute on Deafness and other Communication Disorders
31 Center Drive, MSC 2320
Bethesda, MD 20892-3456
800-241-1044
http://www.nidcd.nih.gov

National Institute on Neurological Disorders and Stroke
Building 31, Room 8A-07 31
Center Drive MSC 2540
PO Box 581
Bethesda MD  20824
800-352 9424
http://www.ninds.nih.gov

Transition Research Institute at Illinois
117 Children’s Research Center
 51 Gertiy
Champaign, IL 61820
217-333-2325
http://www.ed.uiuc.edu/illinoisrcep

National Council on Disability
1331 F St NW, Suite 850
Washington DC 20004-1107
202-272-2004
http://www.ncd.gov

US Department of Health and Human Services
200 Independence Avenue SW
Washington DC  20201
202-690-6343
http://www.acf.hhs.gov/programs/add

National Library Service for the Blind and Physically Handicapped
Library of Congress
Reference Section
1291 Taylor St. NW
Washington DC 20542
202-707-5100
http://www.loc.gov/nls

Social Security Administration
6401 Security Blvd
Office of Public Inquiries
Windsor Park Building
Baltimore MD 21235
800-772-1213
http://www.socialsecurity.gov

EARLY INTERVENTION

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California

Rick Ingraham, Manager
Early Start Children and Family Services Branch
Department of Developmental Services
1600 9th Street, Room 330
MS3-22
Sacramento, CA  95814
916-654-2773
http://www.dds.ca.gov/EarlyStart/ESHome.cfm

Nevada

Wendy Whipple, Administrator
Nevada Department of Human Resources
Division of Health
Bureau of Early Intervention Services
3427 Goni Road, Suite 108
Carson City, NV  89706
775-684-3464
http://www.nectac.org/shortURLasp?sIrl=NV-partc

ADAPTIVE RECREATION

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National Center on Accessibility
501 North Morton St. Suite 109
Bloomington IN 47404
812-856-4422
http://www.ncaonline.org

Special Olympics International
1133 19th Street NW
Washington DC 20005
202-628-3630
http://www.specialolympics.org

STATE OFFICES OF SPECIAL EDUCATION

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California

California Department of Education, Special Education Division
1430 N Street, Suite 2401
Sacramento, CA 95814
916-445-4602
http://www.cde.ca.gov

Nevada Nevada Department of Education Office Of Special Education
700 E. Fifth Street, Suite 113
Carson City, NV 89701-5096
775-687-9171
http://www.doe.nv.gov